Life as a Snowflake - living with Myasthenia Gravis

This is my life - as I see it. Diagnosed in 2004 when I was only 15, I fight the battle against Myasthenia Gravis every. single. day. I write from my heart; keep it real; & try to create awareness in every way possible!

Tuesday, 14 August 2018

Things to take your Chronically Ill friend in hospital

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When you first get sick, the amount of cards, flowers & visits is almost such that you can't keep up with everything. There isn...

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Wednesday, 6 June 2018

Port & Perm-Cath

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Recently I had to be admitted again to have a port & perm-cath inserted. This was my third anaesthetic for this year, & that though...

Friday, 11 May 2018

Destination Unknown

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Last week proved to be very hectic with a trip to Cape Town to see the Prof about what treatment plan we can try out now. I had a round of p...

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Monday, 12 February 2018

Just breathe...

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At the end of last year, a friend reminded me how important it is to go for all my check-ups - I had been so focused on my MG throughout the...

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Wednesday, 17 January 2018

Reflections

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2017 was a difficult horrid trying year for me, & for many others that I have spoken to! I don't know what it was about it, but...

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