I have started an online platform where I can sell all sorts of MG support goodies, such as awareness pins, hoodies, cushions, shopping bags & so on. Friends, family & fellow snowflakes have really been supporting me in this & I always get a smile on my face when I see one of my products out there in the big wide world for others to see. If you live in South Africa & would like any of these products, you can view what I have here.
|Car License Sticker|
|Tote Shopping Bags|
I was also very excited to have a feature in one of our local newspapers yesterday. This was to try help create awareness for the Rare Disease Society of South Africa but also to let other Myasthenics know that they are not alone in this fight. I have received such positive feedback & it was a beautifully written article. So thank you for your help!
Next week Sunday is the Color Run in Durban. If you would be interested in joining this fun event, why not do it for Running4Rare & help create awareness at the same time? I really think this is going to be a day for the books & cannot wait to experience this for myself. You can enter here.
Just a quick blog, but wanted to let you know I have not forgotten about you, nor this blog. There has just been so much going on & I was off for almost 2 weeks due to an operation on the 18/06/2015. I am slowly easing back into normality & trying to get on top of everything.
P.S. If you want to read the article, go check it out here & give me your opinion! There was also a brilliant article written about the Rare Disease founder, Kelly & her gorgeous son Juan who fights Pompe. Well worth a read here. Kelly, you are an absolute inspiration & I want to thank you from the bottom of my heart for all you do for the people with rare diseases whilst battling through everything in your own life & your very sick little boy. You provide support, love & a platform whereby we can reach out to others. Together we are strong xxx